Decision details

Rachel Snow-Miller, Director of Commissioning – All Age Mental Health and Learning Disability Services, Lancashire and South Cumbria Integrated Care System and Sue Hastewell-Gibbs, Clinical Lead for Transforming Care, NHS England and NHS Improvement (North) presented to the Board an update on Transforming Care – Learning Disabilities Mortality Review (LeDeR).

The report updated the Board on the findings of the 3^rd Annual National Mortality Review report and this had been implemented locally and to highlight the health inequalities suffered by people with Learning Disability and/or Autism across Lancashire and South Cumbria.

The Learning Disability Mortality Review (LeDeR) programme was established in June 2015 in response to significant ongoing concerns about the likelihood of premature deaths of people with learning disabilities.

In Lancashire and South Cumbria the estimated number of deaths of people with learning disabilities is 102 per year.  The local challenges include a lack of reviewers across health and social care, lack of awareness of the Learning Disability Mortality Review programme and provider sign up.

To date, Blackpool Teaching hospital has implemented learning disability awareness training within the Adults Community division as a direct consequence of the learning from some Learning Disability Mortality Reviews together with development of two, seven minute briefings on reasonable adjustments and capacity/consent for sharing with all staff in the division/trust.  There were also plans to review the Speech and Language/dysphagia processes in place in the Trust.

Priorities for Lancashire and South Cumbria going forward are:

·  Commence and complete the backlog project by March 2020.

·  Develop a communication plan to raise awareness of the Learning Disability Mortality Review programme across the Integrated Care System.

·  Support learning into action.

·  Work with Public Health England to explore key focus areas for action.

Resolved:  The Health and Wellbeing Board:

i)  Supported the implementation of learning into action across Lancashire and South Cumbria.

ii)  Supported the focus on reasonable adjustments being made in relation to people with Learning Disability and/or Autism across the region.

iii)  Supported communication of the Learning Disabilities Mortality Review (LeDeR) programme across the region.